The Relationship Between Systems Change and Being Present with Others

June 3, 2014

If you’ve come here to help me, you’re wasting your time. But if you’ve come because your liberation is bound up with mine, then let us work together.

— Lilla Watson

Man cannot be one thing in one area of his life and another thing in another area of his life.

— Mahatma Gandhi

Despite the hiring of peers, the mental health system still has not implemented the recovery and trauma-informed values advocated by both SAMHSA and by people with the lived experience of mental health recovery. The New Freedom Commission (2003), Olmstead Decision (1999), and IOM Report Crossing the Quality Chasm (2006), have all called for a transformation of the mental health system from a focus on maintenance to a vision of recovery of a life in the community but the old system chugs along increasingly out of touch with common sense approaches that inspire hope, self-determination, empowerment and so much of what every human being longs for.

Person-centered planning requires a system-wide shift in communication, as well as adaptation of recovery-oriented, trauma-informed values. Tomorrow, Dan Fisher, W. Reid Smithdeal and I are offering a free webinar that will provide administrators, managers, providers of mental health services and others with some essential communication tools needed to transform their systems to being recovery-based, trauma-informed and empowerment focused. A system-wide shift in communication is needed and we must move away from the hierarchical, one-size-fits-all way of thinking to instead practicing mindfulness and presence with every one… We are changing the conversation and re-defining mental health service and support delivery systems. And for that matter- we are moving beyond systems to community building. However, for the purpose of this webinar we will focus on transforming mental health and behavioral health systems.

The webinar will use Emotional eCPR (eCPR), a primary prevention public health education program that teaches anyone to support another person through an emotional crisis as a foundation for how to bring about a fundamental shift in our culture – be it organizational culture, or family or community culture. The principles and dynamics are transferable anywhere. eCPR is a powerful tool for enhancing interpersonal communication and cultural empathy. It teaches everyone how to implement the values of recovery on a one-to-one basis. What is instilled on the individual level has ripple effects on the group level and on the system level. Speakers will discuss how some of the components of eCPR are being taught in community mental health centers enabling providers to embody the values of recovery such

as the importance of every voice, of respecting the whole person, of being nonjudgmental, and of sharing one’s humanity with persons in distress.

We need to bring compassionate listening into our conversations and open up the dialogue, welcoming different perceptions because that is how we build alliances and heal and grow as a community, as an organization, and as a human being.

We will address the chasm between “staff” and “persons served.”

We will wrap our minds around the concept of the wounded healer, of leveling the field and respecting that we are all teachers, we are all students, and we learn together.

Presenters:

Daniel B. Fisher, MD, PhD: who co-founded the federally funded National Empowerment Center and serves as its executive director. He was a commissioner on the President’s New Freedom Commission on Mental Health, 2002-2003.

W. Reid Smithdeal, MSW, LCSW : the Recovery Services Manager for Meridian Behavioral Health Services where he coordinates clinical services.

Lauren Spiro, MA: . A schizophrenia survivor, associate director of National Coalition for Mental Health Recovery and author of Living for Two: A Daughter’s Journey From Grief and Madness to Forgiveness and Peace.

Click here for instructions for joining the webinar, June 4, 2014, 1:30pm – 3:00pm EDT, (12:30 CDT, 11:30 MDT, 10:30 PDT)

29 April, 2014 10:53

a post publication learning
​I took a step forward to show my nakedness. In opening this space where my heart and my mind join, I felt for a while that I was exposing a raw vulnerability. And I finally realize that I am standing on firm ground. There is nothing more solid to stand on then one’s intelligent body, that vessel that ally that is always closer than close on the journey with us. So we stand body and mind, in raw awareness of self – where there is nothing to hold onto and nothing to lose and nothing to fear- and realize that vulnerability is an illusion.
​

Where There is No Word for “Alone”

I dream of community where people feel loved, where they know they have a place and they belong, and if they need support they have people and resources to assist them. I dream of a world where no one is left behind, ignored, hurt and isolated. I learned a lot about the meaning of community in Senegal, West Africa where I lived for a few years. One day while I was still learning to speak Mandinka, the language of my village, I asked “How do I say, I am going running (alone, by myself)?” It was explained to me that there was no word for “alone” in Mandinka. It struck me as quite profound. In this village and in this widespread language they had no concept of “aloneness”. The idea that people would do things alone didn’t exist. It might not be too surprising to understand that in Senegal I found the happiest people I have even known. Their days were filled with hard work but a lot of joy and celebration and gratitude. Imagine a community where the concept of ‘alone’ didn’t exist, where our lives were woven together in a beautiful tapestry and everyone saw, respected and understood the tapestry.

That’s a far cry from the Washington, D.C. metropolitan are where I have lived almost my entire life. An internationally known and well-traveled colleague had been in DC working with me for a couple of days when he turned to me and said “DC is a hard and cold city”. My response was “Yes it is.” I forget how hard and cold it is sometimes but it comes back to me especially when I leave town and see how warmly and sincerely people greet one another in other places. They take the time to make a genuine connection, even if only for a minute. It scares me that that seems to be a dying art in some major U.S. cities.

How do we build healthy, resilient and inclusive communities? I don’t know a better way than to have open dialogues, conversations focused on opening our hearts and minds. It seems like a simple way of discovering newness – new information, new connections, new insights, new paradigms, new breath, new hope.

Working together with Iden Campbell McCollum and Donna Barnes, we are taking a simple step towards building community while at the same time answering the call from the White House to have “community conversations.” National Coalition for Mental Recovery, The Campbell Center, and Howard University Hospital are joining together to co-host a community dialogue on December, 12, 2013 titled

Diverse Stakeholder Voices Finding Synergies and Solutions:
Mental Health and Substance Addiction in the Nation’s Capitol

The event is from 1pm-5pm at the Howard University Hospital, 2041 Georgia Ave, NW Washington, DC, 20060. In addition to Iden and myself we have a diverse group of presenters including Joan Gillece, National Center for Trauma Informed Care; Dr. William Lawson, Howard University Hospital; Rev Dr. Sherry Molock, Beloved Community Church; Christy Respress, Pathways to Housing; Pat Taylor, Faces and Voices of Recovery; Wilma Townsend, Federal Substance Abuse and Mental Health Administration and others. Our objectives are to:

Learn how people in mental health and/or addiction recovery are blazing new trails to becoming fully engaged and included in life in the community

Share innovative strategies and resources for building healthy communities in the 21st century

Build collaborative, inclusive communities by having dialogue participants share their thinking and next steps.

We are still planning the details but we thought that providing some questions might help focus the panel presentations. Some of our ideas are:

– What does a healthy community that supports people in recovery look like? What does it mean for you personally? For law enforcement? For your profession? For people in recovery?

– How can we support people in recovery to be fully included and valued in the community?

– What steps are you taking to build a healthy, inclusive community?

– How do we support people whose psychiatric medication is not working for them?

We have two panels. The first panel is titled “Pioneers with Lived Experience: Changing the Conversation about Recovery and Community Inclusion”. Panel 2 is titled “Building Healthy Communities in the 21st Century”. We plan to show the 6.5 minute Open Paradigm Project video: Moving Beyond Psychiatric Labels to encourage people to think out of the box.

I have a dream. You may have one too. Together we can strategize about how we make that dream a reality. This dialogue ends with time to share or formulate concrete next steps.

May the power be ours to create new relationships – to shine a light on the beauty of our shared humanity.


Part Two: Awakening From the Dream

One thing I know is that human beings on this planet have perpetuated war for thousands of years. In a previous blog I addressed the cause of war (see eCPR: A Tool and a Process for Peacemaking). Unspeakable and unimagineable atrocities continue to be carried out and the political and societal majority on this planet continue to not embrace a movement towards peace. And although this breaks my heart, I am optimistic. Why? Because there are a growing number of people, visionaries, who are awakening from the dream. This awakening includes an opening to an inclusive paradigm by which I mean we are taking our shared humanity and our understanding of expanding human rights issues to the next level.

One example of this is the recent U.S. Supreme Court’s ruling in favor of the rights of people in same-sex mariage. This expansion of human rights can be described in a number of ways but it boils down to being able to completely and fully accept that we are surrounded by a wealth of individual and collective diveristy. This wealth of diversity includes and is not limited to our human experience, our emotion, knowledge, perspectives, ethnicity, different approaches to life, living, thinking and ways of being, as well as different levels of consciousness and states of mind.

I will expand a bit on the mental health diversity domain. This new frontier, though unacknowledged by some, is a growing subcurrent spreading across our planet. It is our developing capacity to be with those whose levels of emotional distress or altered state of reality may be quite different from our own. Peole may be experiencing anything from needing attention – which often gets labeled as attention deficit disorder – to states that are labeled psychotic. Too often our knee jerk reaction is to “profile” them or label them as different from us so we can conveniently dismiss them as not being pertinent to us, and labeled as “different”, “other” or sick in some manner. And we find many creative ways to maintain our delusion of separateness.

We confuse the person with the patterned way s/he may be thinking, feeling or behaving. The person is not the pattern. If we look with a deeper lens we can engage the person (who appears to be in an altered state of awareness or consciousness) and support him/her in moving from monologue to dialogue. Humans have creative ways to protect ourselves against perceived threats to our safety. Our awakening as a culture is also reflected in another phenomenon that is spreading in the U.S. and overseas which is peer-run respites – an exquisite example of how people with lived experience of mental health recovery support people to become included in the life of the community without labeling and often without the use of psychopharmaceticals. A final example of our awakening is the neurodiversity movement which promotes that there are diverse ways of learning and that neurological differences should be recognized and respected as a social category on a par with gender, ethnicity, sexual orientation, or disability.

In closing I think of the famous words of Martin Luther King, Jr. “the salvation of the world lies in the hands of the creatively maladjusted!”

How creative is your mind and how open is your heart? Are you willing to work on alliance building and ending the war in your own mind so that we may end all wars?

What I Know

Lauren Spiro

When we are present in the moment, we are free from any attachment from the past as well as free and open to what lies ahead.

Living each day in awareness invites discovering new depth and meaning; we are shown the way through, and all we have to do is be open to the possibilities.

Through our relationships with self and others we create a dynamic energy that can manifest a new reality. This soulful synergistic awakening is powerful in truth and wisdom and is our Devine legacy.

As we tap into meaning found in the depths of mind/body/spirit dialogues we come to understand the elegant mosaic that is someone’s life. This dance of discovery and fusion, much like the metamorphosis of caterpillar into butterfly is an evolutionary growth process.

It is an act of faith to give credence to creative expression; it’s a process of burning off the haze and illuminating the inner self. We, and others, are changed by this process.

As a child of the universe, how we live our life is an artistic creation; We are the canvas, infused with rainbows, reflecting light, and healing wounds.

As we deepen our awareness that change happens through us (not to us), we more fully embody our role as visionaries ushering in a cooperative and peaceful world.

To create a just America, an America where everyone is included we must envision it, we must convincingly and collectively believe it and speak it. This is not a revolution against something, it is an evolution towards a better quality of life for all living beings.

Emotional CPR as a Way of Life

by Lauren Spiro, Leah Harris & Dan Fisher

Emotional crisis can happen to anyone, at anytime. But how many of us are equipped with the skills to support a friend, loved one, co-worker, or even a stranger through a crisis? Actually we all have an instinctive capacity to help others through crises, but just need to gain the skills and confidence to do so.

Many of us are taught to fear the expression of strong emotions, and to hide or suppress big feelings. We have also erroneously been taught that only specially trained people or “professionals” are equipped to handle these experiences. But people knowledgeable in conventional treatment often aren’t exposed to community-based, holistic, common sense, person-to-person approaches. Many people have gained wisdom and resiliency by working through emotional distress, and it is helpful to do this with someone who understands the growth potential in these experiences.

Continue reading →

Emotional CPR: a Tool and a Process of Peacemaking

It has been several years now that we have been bringing Emotional CPR (eCPR), our public health education program designed to teach laypeople to assist each other through emotional crisis, to communities across the United States and overseas. Many people have told us that the skills they have learned in our training have helped them communicate better in all their relationships. They also tell us that eCPR is a “way of life,” in that it is a practice of being more accepting of and present to ourselves and others. This is very good news, and it is an invitation to take our understanding of eCPR to a deeper level.

A few months ago I had the great honor of speaking with Kofi Annan, former secretary general of the United Nations, after a talk he had given locally here in Washington, DC. We spoke about eCPR and there was a moment that I will remember for the rest of my life. He looked deep into my eyes and said, “We are in the same line of work. We are peacemakers.” It was a profound statement that inspired me to think more about eCPR as a tool of peacemaking.

Continue reading →